EFTA Document EFTA02134102

To: From: Joseph Thakuria Sent Wed 7/3/2013 3:40:45 PM Subject Re: skin sample at MGH Lesley GrofffMnial mmial n[ • %amail.comt: George Church • Hi Lesley, et al, I wanted to check in on Jeffrey to make sure all is well post skin biopsy. As I've said, he can expect a small scar and should watch for any signs of infection/bleeding. Second, I also wanted to make sure he fully completes pgp enrollment online. It's very important for us to proceed. He's completed the exam (exceptionally well I might add; he clearly has a knack for this info) but he still needs to log in, review the consent form, and assent to it electronically. (We did go over everything verbally in person though.) Give him my regards and feel free to contact me with any questions. Best, Joe Thakuria On Fri, Jun 28, 2013 at 9:04 AM, Joseph Thakuria a wrote: Ok, sounds good. Joe On Jun 28, 2013 9:01 AM, "Lesley Groff" wrote: (I hope Jeffrey will be able to get all taken care of before seeing you! Perhaps he even finished it last night and I just don't know about it.) Sent from my iPhone On Jun 28, 2013, at 7:43 AM, Joseph Thakuria a wrote: Lesley, thanks. Jeffrey needs to be fully enrolled before blood draw and skin biopsy per our protocol. Worst case scenario, I can try and walk him through it at mgh on a computer before the phlebotomy/bx. But, ideally, this is done before he gets here at I. I have a hard stop at 2pm so I'm worried we're gonna be pushing it on time if this isn't completed beforehand. Thx, Joe EFTA_R1_00781174 EFTA02134102 On Jun 28, 2013 7:35 AM, "Lesley Groff" wrote: Thank you very much for the information and phone numbers. Pm sure all will go well. We did register Jeffrey on line. I am not sure how far along he is through the entrance exam portion. and can speak to him about it this morning Sent from my iPhone On Jun 27, 2013, at 11:59 PM, Joseph Thakuria wrote: Sony, there was an extra "7" typo in my last email for my cellphone #. Correct number is Best, Joe On Thu, Jun 27, 2013 at 11:56 PM, Joseph Thakuria •,= > wrote: Hi Lesley, Sorry for not getting to this email earlier. Today was jam packed. Assuming we're still on for this, plan to show at 1PM tomorrow at 6C (on the 6th floor) of the Yawkey building - which is the main outpatient bldg sitting just in front of the main hospital (MGH 55 Fruit St.). When Jeffrey' get there, just ask our medical genetics secretary (sitting on the left as you walk in, Sandy Massalski) to let me know your here. My cell is MI-7774-3346. I can also be paged through the main hospital number : 617-726- 2000. Apologies again for not getting this info out to you sooner. You may have mentioned this in a separate email but was the online enrollment process completed for Jeffrey? Joe Thakuria On Thu, Jun 27, 2013 at 2:04 PM, Lesley Groff Ma> wrote: Hi Joe...just checking in to see if you had any more details for tomorrow? EFTA_R1_00781175 EFTA02134103 Also, I would like to pass along Jeffrey's assistants names and cell phone numbers who will be accompanying him tomorrow. They will be your point persons: and arc also cc'd here. Thanks, Lesley On Jun 26, 2013, at 3:46 PM, Joseph Thakuria wrote: Thanks, George. Hi Lesley, I don't have the specific exam room yet but this will be done somewhere on the main mgh campus, 55 Fruit St., Boston, MA at 1PM. I'll have specific details for you tomorrow at the latest. (There's always an exam room crunch when we try to squeeze people in - but we will find something.:) Lesley, I think the best contact number to have in this case will be my cellphone, . Reception at the hospital is not always the best so if some reason you don't get me right away, you'll definitely get me my pager. That back up number is the main mgh hospital hospital # 617-726-2000. Just ask the operator to page Dr. Thakuria (pager #30186). Best, Joe Thakuria Joseph v. Thakuria, MD, MMSc Medical Genetics and Metabolism Attending Physician Director, MGH Stickler Syndrome Program Medical Director, Personal Genome Project Harvard Catalyst CRC Protocol Review Committee MGH Center for Human Genetics Research Massachusetts General Hospital 185 Cambridge St., Rm. 2222 Boston, MA 02114 Office: 617-726-1561 Fax: 617-726-1566 email: [email protected] The information in this e-mail is intended only for the person EFTA_R1_00781176 EFTA02134104 to whom it is addressed. If you believe this e-mail was sent to you in error and the e-mail contains patient information, please contact the Partners Compliance HelpLine at http://www.partners.org/complianceline If the e-mail was sent to you in error but does not contain patient information, please contact the sender and properly dispose of the e-mail. On Wed, Jun 26, 2013 at 3:31 PM, george church < > wrote: 12:45 or 1 PM should be fine. The physician who will take the samples at MGH is Joe Thakuria, MD (CC'd). Probably it will take one hour (including consent form signing). He can give you additional info as needed. —Geo On 6/26/13 11:45 AM, "Lesley Groff" <[email protected]> wrote: >George, OK for Jeffrey to arrive below location at around 12:45pm? >On Jun 26, 2013, at 8:44 AM, george church wrote: >> The location will be at MGH, 55 Fruit St Boston. >> --geo >> On 6/25/13 3:41 PM, "Lesley Groff" wrote: >> >>> Great news! How long will this process take? I could probably have >>> Jeffrey to Harvard by 12:30 or so...Where does he need to meet your >>>staff? >>> >>> >>> On Jun 25, 2013, at 3:37 PM, george church wrote: >» >>>> It looks like we might be able to do this Friday (at least the MD and >>>> biopsy pans are scheduled), but need to know the time of day so the >>>> technicians can get the skin cells growing before taking off for the >>>> weekend. Also will need a consent form signature (after the test is >>>> done). >>» >>>> Thanks, >>>> --Geo >>» >>» EFTA_R1_00781177 EFTA02134105